WinQure Medicine’s CEO, Dr Stephanie Manton, recently joined MEP Stine Bosse’s podcast for a discussion on ultra-rare diseases and the challenges faced by patients and families across Europe.
Drawing on both personal and professional experience, Dr Manton discussed the barriers many patients encounter in obtaining a diagnosis and accessing appropriate treatment. The conversation also explored the evolving European regulatory and reimbursement landscape, the future of genetic medicines, and the infrastructure needed to make innovative therapies accessible to patients with ultra-rare diseases.
At a time when the European Biotech Act is actively being developed, conversations around innovation, regulation, reimbursement, and patient access have never been more relevant.
Listen to the podcast here: Bosses Bodega ep 13 – Dr Stephanie Manton